First my questions, for those uninterested in wading through this
long post:
1. How many of you have had your bands removed due to erosion, and
then been rebanded?
2. What is the accepted knowledge on re-erosion rates?
3. Has anyone who experienced erosion, had their band removed, and
then got rebanded, experienced erosion again?
4. For those of you with a prior erosion who have been rebanded do
you have any special protocol to ensure non-erosion of your new band,
or frequent testing to be sure all is okay?
Many thanks for all your insight and responses.
My story:
I have had an uneventful banding adventure. I LOVE my band. I am
down 97.5 pounds in 17 months. I had a port revision in Nov. 2003,
due to tearing my port sutures in June 2003 over-reaching for
something.
I virtually never PB. I eat a decent amount of food I am
definitely not too tight. I do not drink carbonated drinks, or take
NSAIDS. I am on no medications. The only thing I may be guilty of
is occasionally overeating.
My last fill was October 2003 I am at 2.6. I have good restriction.
On Thursday, June 3, 2004 I had what felt like an intense gall
bladder attack. Very concentrated pain in my back, about band
height. An extreme feeling of pressure and heat radiating from my
upper stomach area. I felt as though if I could just burp, fart or
have a bowel movement I would feel better. These are my classic gall
bladder attack symptoms. Problem: gall bladder was removed June,
1992. My sister rushed me home from work, where I took some Maalox
and went to bed. All in all the pain episode lasted about 2 hours.
After laying down for about ½ hour the pain stopped, and has not
returned.
Because I hadn't had my annual band check-up yet, I decided it was
time. I wanted to make sure all was good with my band before I
followed-up on this pain with my U.S. doc. I got an appointment for
Saturday, June 19, 2004 to have an endoscopy done.
Unfortunately, the news is not good.
I am trying to put this in perspective, but I still cried all the way
home. My band has eroded, and has to be removed.
I guess the good news is... it can be removed. And I have lost 97.5
pounds with it. It's just that... I don't mean to sound
melodramatic, but honestly, I would almost rather be dead than gain
that weight back. I think that's what all the tears are about. Not
the additional surgery, or the $5,500 it's going to cost, but that
terrifying fear that the weight is all going to come back on.
Again, writing this out, it seems like such a petty fear. It's not
like my life is directly in danger, or anything like that. I just
thought I had finally, finally found the answer to staying a more
healthy weight without struggle. It was a beautiful dream...
Dr. Carmen did say that once everything is healed back up, I could
be rebanded. But I have read on the support boards that once you
have an erosion, the chances you'll have a second erosion is 50%
(initially it's supposed to be 1-3% chance of erosion). I told Dr.
Carmen that, and she said no, the chances remain the same, and in
fact, may even be a little less, because the scar tissue left over
from the first banding makes the stomach wall a little thicker,
almost like a callous, which could help reduce the chance of a second
erosion.
I will have to do more research to see if that might be true - it's
the first I've heard of it. I wonder if they could use the same
band, or if Inamed would take it back and give me a new one for
free. Otherwise, I have no idea how I will find another $10,000 to
cough up for rebanding surgery.
As I was bawling in the doc's office, she swore that they would do
everything in their power to help me maintain my current loss. She
even offered the possibility that Dr. Lopez could do a gastric bypass
on me while he had me open to remove the band. At least I still had
enough wits about me to say absolutely not, I definitely do NOT want
a gastric bypass. I made her promise that no way, no how, would I
wake up with a gastric bypass. She said not to worry - if I didn't
want one, they wouldn't do it.
On the way back from the endoscopy Dr. Carmen asked if I still had
restriction, and I said yes, and she said that I could keep my band
until I lost restriction. But once we got back to her office and she
looked at the pics, she said the band had to come out. Then she
called Dr. Lopez, and he said it needed to come out as soon as
possible. So Friday, July 2, I go in to have my band removed.
Damn.
Dr. Carmen assured me that nothing I had done caused this, and
nothing Dr. Lopez had done caused this it just happens sometimes.
Hopefully I can keep from bawling over this too much. I am so very
lucky, and so very grateful for all of my blessings. I love, love,
love my band, and do not regret one moment. After talking with
Inamed and hearing advice from my other various board memberships, if
I am convinced that the erosion rate is not increased, and I can
somehow find the funds, I will get rebanded after everything is
healed up. I'm afraid it may be hard to convince me, though, that
this won't just happen to me again.
Now it is time for me to play the grateful game:
1. I am so grateful I was able to have the initial surgery, and have
an unremarkable recovery.
2. I am so grateful to have lost 97.5 pounds virtually effortlessly.
3. I am so grateful I have made such wonderful bandster friends.
4. I am so grateful that my erosion was discovered before gastric
juices started leaking into my abdominal cavity and really caused
serious problems.
5. I am so grateful I have the money to pay for the band's removal.
6. As much as I will miss my band, I won't miss the annoyance of my
port and tubing.
7. I am so grateful I made the time to have therapy for my
compulsive overeating problem, and pray all that I have learned
through that and over the past 17 months will help me keep off the
weight I've lost.
8. I am so grateful to have my health.
9. I am of course grateful for my wonderful, supportive, and loving
BF, family and friends.
10. I am so grateful to have a wonderful job, and a decent income
where I can own my own home, and reliable transportation.
The grateful list could go on, and on, and on.
If the group allowed it, I created a folder called "Donali" and
uploaded the pics from the endoscopy.
A rough translation of some of the gastroentologist's written
comments:
The body of the stomach and part of the antro is deformed (pic 4) by
foldings that go through this zone and which is an extension of the
round portion of mucus formed by the band which is observed in the
cardias (valve between the esophagus and stomach). The posterior
part of this round part of mucus and penetration of the band in 40%
of it (pics 2&3)
P.S. sorry I couldn't spell "mucous" correctly on the pics.
Donali
Dr. Lopez, 1/23/03
303/205.5/135